Donations to Honor Noah

We are the new best friends of the Denver Children’s Hospital. Shortly after Noah’s death, a Geneticist from their Inherited Metabolic Disease Clinic called us and asked if they could study Noah’s case to try to learn more about MCAD, the genetic disorder that Noah died from. This was a comfort to us – knowing that his life could maybe serve to save others. We immediately agreed. They will spend the next 2-3 weeks proving that that is what Noah had (and they feel certain that they will be able to do this, as Noah’s early test results show strongly that he had MCAD). They will then start testing Chris and I to learn more about why this happened, and what our chances are for giving it to future children if we choose to try again.

This clinic helps parents like Chris and I understand what happened, and use the results of their testing to try to prevent it from happening to other families. They also use donations to help families where they were able to catch the genetic disorder early enough, and treat affected children. There is expensive special formula that parents sometimes need to buy for babies, cell phone costs so that parents can contact the clinic doctors at a critical moment, reproduction of pamphlets and training materials for hospitals, etc.

If you would like to support this cause in Noah’s name, donations can be made to the following address:

The Children’s Hospital
Inhertied Metabolic Disease Clinic
Attn: Noah Robert Wilkerson Fund
13123 E. 16th Ave, B153
Aurora, CO 80013
www.thechildrenshospital.org/conditions/genetics/index.aspx