Maggiepaws

Monday, July 06, 2009

Donations to Honor Noah

We are the new best friends of the Denver Children’s Hospital. Shortly after Noah’s death, a Geneticist from their Inherited Metabolic Disease Clinic called us and asked if they could study Noah’s case to try to learn more about MCAD, the genetic disorder that Noah died from. This was a comfort to us – knowing that his life could maybe serve to save others. We immediately agreed. They will spend the next 2-3 weeks proving that that is what Noah had (and they feel certain that they will be able to do this, as Noah’s early test results show strongly that he had MCAD). They will then start testing Chris and I to learn more about why this happened, and what our chances are for giving it to future children if we choose to try again.

This clinic helps parents like Chris and I understand what happened, and use the results of their testing to try to prevent it from happening to other families. They also use donations to help families where they were able to catch the genetic disorder early enough, and treat affected children. There is expensive special formula that parents sometimes need to buy for babies, cell phone costs so that parents can contact the clinic doctors at a critical moment, reproduction of pamphlets and training materials for hospitals, etc.

If you would like to support this cause in Noah’s name, donations can be made to the following address:

The Children’s Hospital
Inhertied Metabolic Disease Clinic
Attn: Noah Robert Wilkerson Fund
13123 E. 16th Ave, B153
Aurora, CO 80013
www.thechildrenshospital.org/conditions/genetics/index.aspx

4 Comments:

Anonymous Anonymous said...

It is such a heroic and brave step to participate in such critical research--for yourselves and others. I applaud both of you. I have watched your joyful progression thru pregnancy to parenthood with true happiness. I now feel such deep sorrow for your loss. Please know I pray for and think of you quite often.
Ruthann Fisher

6:57 PM  
Blogger jilli said...

children's is truly a blessing! how lucky we are to have such an amazing facility in our back yard! our baby girl had surgery there just a few weeks ago. the doctors, nurses, techs and staff are absolutely exceptional and genuinely want to take the best of care for you. i am so glad that you have been joined with the team of experts there to help you in this journey to gaining answers and healing.

10:09 AM  
Blogger Liz Biewen said...

Ed & I had some interaction with the geneticists at Memorial and completely support your decision to participate (and change your mind in the future if needed). Noah and his family will no doubt inspire the researchers and families at Children's. Love and positive intentions for your healing being sent your way...

10:41 AM  
Anonymous Julie S said...

Noah will continue to bless others, thanks to your selfless decision to offer him for research. We are so profoundly saddened by what's happened and pray for you and your family often. I'm praying that you will lean fully on God's promises to give you comfort and peace. May God bless you as well as the doctors and the research they are doing.
Julie

10:46 AM  

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